The We Love You Connie Foundation was created in the Loving Memory and Honour of a brave, enthusiastic, compassionate, beautiful and creative special little girl named Connie Monica Guglietti to help find a CURE for DIPG. All money raised will support leading hospitals' improved care, most promising research, and the future CURE of DIPG.
Meet Connie
what is
DIPG?
Diffuse Intrinsic Pontine Glioma, known as DIPG, is a highly aggressive brain tumor found at the base of the brain. This rare tumor is a type of glioma, which means it originates from glial cells which function to protect the nerve cells in the brain. The tumor is located in a critical portion of the brain which controls many important functions including breathing, swallowing, blood pressure, and more. DIPG is found almost exclusively in children under the age of 10 and currently has no effective treatments.
Who Does it Affect
DIPG is typically diagnosed in children between the age of 5 and 9. It affects boys and girls equally. Generally, this type of tumor does not occur in adults.
Learn More
Signs & Symptoms
Many early symptoms of DIPG can be seen in facial areas, including eye movements, while more developed symptoms will include significant other neurological issues. Symptoms often appear quickly and progress rapidly.
Learn More
Prognosis
Unfortunately, the prognosis for DIPG is very poor. It is unknown what causes DIPG and in the absence of effective treatment, DIPG is a fatal diagnosis. It is the leading cause of brain tumor death in childhood.
Learn More
The
Foundation
The We Love You Connie Foundation is a fundraising effort dedicated to raising money to find a cure for DIPG. After the passing of their first-born daughter, Connie Monica Guglietti to DIPG in 2016, Marco and Michela Guglietti began the foundation along with Marco’s brothers Silvio, Riccardo and Johnny Guglietti and we are proud to announce that to date over $4 Million has been already donated to specific Neuro-Oncology programs in the World’s Leading Hospitals for Improving Care, Supporting Most Promising Research Trials, and Future CURE of Children’s Brain Cancers, namely DIPG!
Currently, the WeLoveYouConnieFoundation has committed $7.5 Million to the Most Promising Research at Leading Hospitals and Institutions worldwide as follows:
$2.0 Million Commitment to the Sick Kids Hospital
Currently supporting Precision Medicine Program for patients diagnosed with DIPG program led by Dr. Cynthia Hawkins and Dr. James Rutka
$1.5 Million Commitment to the Montreal Children’s Hospital
DIPG Research, Drug Trials and Genetic Research, by Dr. Nada Jabado
$1.0 Million Commitment to Seattle Children’s Hospital
CAR T Cell Immunotherapy Clinical Trial by Dr. Nicholas Vitanza & Team
$1.0 Million to Children’s Cancer Institute, Sydney Australia
Multi Drug and Epigenetic Clinical Trial by Dr. David Ziegler & Team
$750,000 to Zurich Children’s Hospital (DMG-ACT)
Clinical Trials and Research led by Dr. Javad Nazarian and Dr. Sabine Mueller
$500,000 to Princess Margaret Cancer Centre
Immunotherapy Brain Program led by Dr. Pamela Ohashi
$500,000 to Dana-Farber Cancer Centre
DIPG Research led by Dr. Mariella Filbin and Dr. Mimi Bandopadayhay
$100,000 to Boston Children’s Hospital
DIPG Research led by Dr. Edward R. Smith and Dr. Marsha Moses
$100,000 to Nicklaus Children’s Hospital, Miami
Brain Tumor Research program led by Dr. Ziad Khatib
€43,000 to IOZK Clinic, Köln, Germany
Immunotherapy Program led by Dr. Stefaan Van Gool
$50,000 to Kids Health Links
In Sponsorship of the Upopolis: Sibling Island Online Group for youth aged 10 - 18 who have a brother or sister with a chronic or critical illness, medical condition or disability.
It is Our Mission to continue the Courageous fight started by Our Angel Connie to Improve the Outcomes for Children Diagnosed with DIPG with the Future Goal always toward a CURE!
How you can
Help
Donations are always appreciated,
but there’s even more you can do to help!